It is NOT possible that in 21 hours Sheina will be gone for a WEEK. Just not possible. How does time just keep going on when my heart is lying by the roadside shattered? Not fair, not fair  I've been here before and felt it before and I felt the same way then... everybody STOP and LISTEN to me, Sheina is GONE!!! How can you just sit there eating your lunch! Or whatever.

Everybody kept telling me to take care of myself, I was going to get sick... sure enough did, starting with the MG thing and the ER the day Sheina died... now here it is a week later and I"m having IV infusions for 3 days trying to get some strength back in my throat muscles. My BP is ridiculously low averaging 100 over 40 which is scary as hell. Every time I cry or even start to tear up my throat tries to close and cramps up. Today while having IVIG I "enjoyed" my first nasal regurg of coffee - oh, that was lovely. My nurse said "uh-oh."  Yup. Uh-oh is right.

If I am not better Friday morning they are admitting me for more treatment. Wonder what that means, pheresis?? Who knows... but it's about time somebody got to the bottom of this. New neuro, we'll see.

Sarah is following my every step. She is such a doll baby I do not see how I could ever give her up now.

I will say that after losing Sheina and 100 mg of pred for 4 days, I have the cleanest gardens on the block and the cleanest house in a  long time.  I know one thing I am SCARED - last time I had more than one day of IVIG I threw a blood clot! 

Helluva way to do it.

John called yesterday, he thinks they are onto the MG thing and needed records faxed in. Hopefully they will let him waiver and stay. MAN I hope so!! He wants it so bad. I missed his 20th birthday

Well, off to bed - where four schnauzers are waiting to go snore in my ear, LOL. I know I got thru this before with other dogs but it is a lot easier to do wen you have other dogs to care for still. You can't detach.

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